FARMINGTON -- Callie London always has the same request when she makes a wish.
Callie, 13, asks for a cure for cystic fibrosis. That's because she and two of her three siblings suffer from the hereditary birth defect that keeps the cells in their bodies from being able to hold onto salt.
It's a disease with a variety of symptoms depending upon the form, said Callie's mother, Stacie London. But no matter what form the disease takes, a premature death is one of the effects.
"Currently, 38 is the median age for a person to live to who has cystic fibrosis," Stacie said.
"When Callie was born, our expectation was that she wouldn't get out of school," said Mark London, Callie's father. "The life expectancy has gone up so dramatically, even in the 13 years we've been involved."
Callie was chosen as the Top of Utah poster child for the TARGA Tooele Road Rally, a fundraiser to be held on Aug. 27-28 to help grant the desires of thousands of young people like her.
Callie said she knows how good those who help her cause will feel because she's experienced helping someone with a need herself.
The Farmington Junior High School student received her fair share of publicity in January 2010 when she was a featured home designer on the popular television series Extreme Makeover. She helped design a house to assist a family with a young boy with a genetic disorder that causes insatiable hunger, requiring the family to constantly lock up their food because he could overeat to the point of death.
Her appearance in Tulsa, Okla., was a wish granted by the Utah Make-A-Wish Foundation. Callie later became a featured speaker at a fundraiser for the foundation where she explained how she had helped this boy and asked those in attendance to reciprocate.
"Who will be part of my extreme team?" Stacie recalled her daughter saying.
Now Callie would like to send out a similar message for the upcoming race in Tooele.
"I love the idea of them raising money for me to have a cure," Callie said. "I can't wait."
Callie will be a featured guest at the event. She'll ride with Todd Silva, one of the race coordinators, in his 2009 Challenger RT Dodge for part of the way on day two as he sets the pace.
Callie, her 8-year-old brother, Jordan, and 5-year-old sister, Zoe, all struggle with daily breathing exercises and therapy designed to break up the mucus in their respiratory tracts and a regimen of pills and other therapy needed to keep them functioning.
Callie, who weighs 90 pounds and is in eighth grade, struggles to keep up her weight.
"My digestive tract doesn't absorb all the nutrients that I eat," Callie said.
Callie has what she calls a G-tube, a permanent opening in her stomach.
Through that, she gives herself 1,000 calories of pre-digested nutrients each night.
But Callie's struggles don't appear to have brought her down.
"She is awesome," said her mother. "It's good that she has a positive attitude."